Out Of Darkness Comes Light
Our Mission is to improve the outcome for children with Brain Tumors by supporting cutting edge clinical research while also supporting families who face this devastating diagnosis.
Brain and spinal cord tumors are the second most common cancers in children (after leukemia). They account for about 1 out of 4 childhood cancers. More than 4,000 brain and spinal cord tumors are diagnosed each year in children and teens. Brain and other nervous system cancer is the leading cause of childhood cancer death in the United States.
Treatment for children with brain tumors typically involves surgery, chemotherapy and radiation. Sadly, often times these treatments come with devastating long-term consequences such as, developmental delays, permanent hearing loss, neuropathies and seizure disorders.
About 60% of all funding for drug development in adult cancers comes from pharmaceutical companies. For kids? Almost none, because childhood cancer drugs are not profitable. Childhood cancer research is consistently underfunded. Less than 4% of the federal budget for cancer research is dedicated to childhood cancer.